Scott McIntyre November 1 2016 For Jacel Delgadillo of Miami Floridahaving access to medicalcannabis meant having access to her son. Delgadillos5-year-old son Bruno Stillo was born with a rare incurable and debilitating genetic form of epilepsy called Dravet syndrome orSevere Myoclonic Epilepsy of Infancy (SMEI). When the condition was at its worst Bruno endured up to 300 seizures a day. In 2013 Jacel traveled to Colorado to seek informationabout treating Dravet syndrome with cannabis oil. While there she met Dr. Sanjay Gupta who was in Colorado filming his CNN documentaryWeed 2.Brunobegan using medical cannabis oil to mitigate his seizures. With the oil Bruno averaged one to two seizures per week. Delgadillo was eventually able to register Bruno in a Phase 3 drug trial that allows him to take a form of cannabidiol (CBD) being developed by GW Pharma specifically to treat children and young adults with Dravet syndrome. Hes currently receiving treatment as part of that trial. Bruno has gone from being a vegetative and non-responsive child to an active curious and aware five-year-old.Its like magic now Delgadillo saysabout how attentive Bruno has become. I honestly thought before that he didnt know I was his mom. I feel like he knows now. Delgadillo has been an outspoken champion of medical marijuana legalization and a co-founder of the group Cannamoms which supports and advocates for chronically ill children whose conditions may be helped by medical cannabis. Eleven days before Florida votes on Amendment 2 a statewide measure to legalize medical marijuana photojournalist Scott McIntyre spent a day with Jacel and Bruno documenting their joys and struggles. In Delgadillos home everyone does their part to take care of Bruno. Here her stepfather Mario Vallecillo plays with Bruno before helping to get him in the car for therapy in Miami FL on Friday October 28 2016.As part of being issued the investigational drug with cannabis oil Delgadillo has to keep track of her son Bruno Stillos seizures while taking the drug by calling into a service to mark his progress.Jacel Delgadillo left greets fellow parents and doctors as she her son Bruno Stillo 5 and his nurse Idania Gonzalez arrive at Bamp;V Thera-Pro for Brunos therapy sessions in Miami FL on Friday October 28 2016. Delgadillo dressed her son up as a doctor to play along for Halloween. Bruno goes to therapy three times a week for speech/feeding occupational and physical therapy. Since he began using medical marijuana he has steadily improved in all areas of his therapy when before there was not much progress. Latest Stories Floridians Not Amused by 4 a.m. Robocall from Prohibitionists Washington DC Could Expand MMJ Program in Tuesday Vote Mobile Optimization Tips for Cannabusinesses Infographic: Heres How Many Stoners Have Died in Horror Movies Occupational therapist Erika Bermeo helps to guide Bruno Stillo as he exercises his crawling during a therapy session. Before he began using medical marijuana Bruno was mostly immobile. Since he started integrating it into his daily medication his motor skills have improved and his epileptic seizures have drastically decreased.Bruno Stillo shuffles along the floor as he exercises his crawling.In between therapy sessions Jacel Delgadillo shares a moment with her son Bruno. We love to see how much hes grown and how much hes learned said Delgadillo. MMJ in Florida Florida Legalization: Seeking 60 Percent in the Sunshine State Whats the Deal with Floridas Dispensaries? These Legalization Ads Just Might Sway Your Vote Jacel Delgadillo rarely has a moment to relax. Her days are filled with watching and caring for Bruno 5 along with her daughter Angelene 10. Here she returns home after her daughters after-school program in Miami before getting her kids ready for a Halloween event at the school. Even though its hectic were happy.Words of support from Brunos sister Angelene. Delgadillo says that having five people living in one small apartment is tough but she relies on everyone to do their part in taking care of Bruno.While Bruno moves about in his playpen his nurse Idania Gonzalez takes a brief rest while watching over him in their Miami. When his mother isnt watching over him Gonzalez is always watching to make sure hes safe.Throughout his day Bruno is constantly looking at his surroundings. More on CBD CBD vs. THC: Why is CBD Not Psychoactive? CBD Holds Promise as Child Epilepsy Treatment Studies Find CBD and the Brain: What Does It Do and What is It Good For? Cannabis and Pets: Treating Seizures with CBD While they were out at the Halloween event Bruno became sick so Jacel decided it was best for him to leave after she gave him his CBD medicine with the help of their nurse Idania Gonzalez. During social events Delgadillo has to keep extra close watch on Bruno.Angelene plays with her brother Bruno. Before he started using medical marijuana Bruno did not seemaware of the people in his life. We love to see how much hes grown and learned said his mother Jacel. cbdElection 2016epilepsyFloridalegalizationmedical marijuanaseizures Scott McIntyre Scott McIntyre is a South Florida-based independent photographer who focuses on documentary storytelling. His main focus has been finding the people places and ideas that make Florida unique. Scott was most recently a staff photographer at the Naples Daily News where he was named Photographer of the Year (small markets) in NPPA's 2016 Best of Photojournalism Contest. Election 2016 Politics Florida Legalization: Desperately Seeking 60 Percent Politics Floridians 'Not Amused' by 4 a.m. Call from Prohibitionists Politics Legalization 2016: America Votes Politics Boston Globe Endorses Legalization The post Reviving Bruno: A Day in the Life of a 5-Year-Old Florida CBD Patient appeared first on Leafly. by Scott McIntyre at Leafly